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Published January 21, 2022 | Version v1.0.0
Study Design Open

Considerations for Capturing of Race, Ethnicity, and Gender Data

Abstract

The Department of Preventive Medicines (DPM) Working Group on Response to Structural Racism in Research surveyed multiple data dictionaries within DPM and beyond (e.g., Feinberg School of Medicine [FSM], United States Census, and the National Institutes of Health [NIH] reporting requirements). We assessed common practice and aggregated ideas from these sources to develop these considerations for best practices when capturing relevant demographic variables in Human Subjects Research. These considerations serve as guidelines and recommendations. They are not binding in any way. We recognize research studies each have unique needs, and there is no single set of best practices that would apply to all studies.

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Additional details

Created:
March 31, 2023
Modified:
January 24, 2024